Sunday, February 5, 2017

Raised Growing Beds & Permaculture Gardens

Below is a repost of a summer 2012 note on Urban Permaculture and raised beds.  It is never too early to start thinking about the upcoming planting seasons in the community gardens!

Summer is half over and that means we are thinking about raised bed fall and winter plantings.  Ordering seeds for the next season's crop is so much fun!  We love going through the catalogues, admiring the photos, thinking about the upcoming seed starting and transplanting efforts.

Here are some of our tried and true, favorite cooler weather plants we like to have started by mid September.  The links will take you to either a description or catalogue page. 


Don't forget to download our Urban Farming book from Amazon with all the secrets about gardening, coop building, hens and more by clicking here!

Florida Permaculture Raised Bed Chives & Lettuces
Also known as rocket, arugula with her bitter, earthy flavors is one of my favorite winter plants.  Excellent on sandwiches, in salads or by herself, arugula is easy to grow, hardy and a must for every Urban Farm garden.
Florida Permaculture Raised Bed Arugula
Famous heirloom varieties, both Mary and Martha Washington varieties were developed around at the beginning of the twentieth century for greater disease resistance. The 1930 Ferry catalog states that Mary Washington asparagus is  "A vigorous growing and productive asparagus bred to resist the disease known as asparagus rust". Mary is a Martha cultivar with oval tipped stalks and comes highly recommended by most asparagus growers.
Another well-known heirloom variety, use dating to just after the Civil War in the Americas but earlier in Europe, Calabrese broccoli is a dark green plant, twenty to thirty inches in height, producing fist-sized central heads, and many side shoots until frost. Noted for her texture and flavor.
Use a variety of Broccolis, cultivars including Belstar, Premium Crop, Packman, Gypsy, Major, Nutribud and Waltham all produce large amounts of food.
An 1820’s heirloom variety, the three inch, round, golden beet bulbs are known for their desirable sweetness. Golden beet’s unusual color adds to her versatility.  Very sweet beet.
The early 1900’s heirloom Early Wonder Beet produces well before the other full-sized beets, has medium to tall size tops that can be harvested and served as delicious greens. Early Wonder possesses a deep red color and rich, hearty flavor.
Deep crimson, dark red, vigorous growing beet producing ample greens. Red cloud beet is know for her resistance to bolting.  She can be harvested throughout most of the growing season.
St. Valery Carrot is an 1885 heirloom carrot and, according to James Vicks’ 1924 catalog, is the "best and most handsome main crop carrot. Enormously productive, very desirable for private gardens as well as for markets." St. Valery has ten inch roots and a strong sugar content (sweet).
The New Kuroda carrot is a strong preforming hybrid, exhibiting a deep reddish orange color. Kuroda may be used as the main carrot crop as it produces well on most small homesteads and growing operations.
Adelaide is a Dutch hybrid know by its more popular common name, Baby Carrot.  Easy to grow and a solid producer, Adelaide keeps its texture and fresh, sweet flavor longer than most carrots.  Very sweet carrot and great for salads.
Long Island Brussel Sprouts is an 1890 heirloom dwarf brussel sprout variety growing on average to approximately two to three feet depending upon climate. The Long Island Brussel variety can set up to one hundred sprouts per plant and was considered the primary commercial variety for years.
Early Jersey Wakefield has been considered one of the best varieties of early producing cabbages for several hundred years of homestead agriculture.  Early Jersey is a 1840 heirloom variety growing to approximately three pound.  She exhibits a pale green leaf color and can be planted close together. According to DM Ferry in 1930, "this most excellent variety is the earliest and surest heading" and one that resists yellowing.
Another cabbage variety highly resilient to yellowing and splitting, Quick Start hybrid is a strong grower, one that can be planted close together in raised beds and relied upon for steady production of three pound cabbage heads.
Danish Ballhead is an 1887 heirloom late fall, blue-green producer. Danish Ballhead was originally introduced by Burpee Seed and has been a popular variety for years.  This cabbage keeps well in storage.
Mills says that Mammoth Red Rock 1880 heirloom cabbage is the “largest of the red cabbages and the most sure heading, also the best for pickling". Mammoth Red had reddish purple leaves and produces a five pound plus cabbage head.  Strong producer and stores well.
This 1890 heirloom cabbage heirloom variety was introduced in the mid-1800's by P. Henderson, president of Henderson Seed Company.  Early snowball cabbage is a reliable early producer of firm texture.  Very popular variety among urban farmers.
Bright Lights Swiss Chard is a stunning plant, certainly desirable for garden appearance but most appreciably important because of her delicious taste and reliable food production.  Leaves are bright deep green, moderately savoyed with veins of stunning bright warm and hot colors, most commonly red, orange, or yellow.  Developed by Johnny's Selected Seeds, this variety is perfect for the smaller garden or those gardens looking to capitalize on visual effect.  Bright Lights is highly recommended by both judy and myself.
Fordhook, while not as visually stunning as Bright Lights, is a reliable performer producing strong and plump white stalks with savory, bright green leaves.
As with Bright Lights Chard, Pink Lipstick offers amazing bright pink-red color. Use Pink Lipstick Chard in salad mixes for color and taste.
This 1890 heirloom cauliflower heirloom variety was introduced in the mid-1800's by P. Henderson, president of Henderson Seed Company.  Early snowball cabbage is a reliable early producer of firm texture.  Another variety popular variety among urban farmers.
Another great cooler weather plant, Starbor Kale is perfect for raised beds because of her beautiful blueish-green hue, firm leaves, great texture and compact growing characteristics. Greens can be eaten cooked or raw in salads.
An 1885 heirloom variety previously referred to as Tuscan Black Palm.  Dinosaur Kale offers large, rounded, succulent greens. Plants are hardy, exhibit vigorous growth habit and are popular among urban farmers as a crop that will feed the family.  We have grown Dinosaur Kale reliably for years.  Greens are good either as a salad component or cooked.
One of my favorite urban farm Kales, the Ethiopian variety will produce like none other.  Very tender and tasty and very drought tolerant.  Grows well in raised beds and seems to be root-knot nematode resistant.
Kohlrabi is also known as a ‘cabbage-turnip’ and the Grand Duke Variety produces a larger, non-woody edible part.  Very interesting plant for the garden and reliable producer.

Excellent pre-Civil War heirloom Kohlrabi variety.  According to DM Ferry Early Purple Vienna Kohlrabi can be considered "early with small top, the leaf stems being tinged with purple. Bulbs of medium size, purple; flesh white. Desirable for forcing and early outdoor planting."  Another excellent vegetable for the urban farm homestead, preforming will in raised beds.
Leeks are an important part of all urban farm gardens.  Lincoln leek is a long , succulent variety that can last for much of the year.  Used in salads, stir fry and other dishes.  Here in the south, established leeks offer good winter color and texture to the urban farm garden.
One of my favorites, this variety is evergreen, drought tolerant and produces well year around.  Offers brilliant white flower spikes.  This is probably one of the most hardiest of the urban farm plants, almost always reliable to out-preform any other crop.
Beautiful red-green, crisp standard lettuce, this variety is a cornerstone of any winter garden in the urban core.  Asian red thrives when picked, producing more and more throughout the season. 
Another popular lettuce variety, especially in Europe, year-round lettuce is as what her name states, a reliable producer except in the hottest of climates where she does best grown in the shade.
Florida Permaculture Raised Bed Lettuces
Ours favorite mix includes; Green Ice, Midnight Ruffles, Black Seeded Simpson, Simpson Elite, Matina Sweet, Buttercrunch, Red Velvet, and May Queen varieties.  Perfect for adding color and a variety of textures to salads.  The urban core farm animals love lettuces too.
A 1949 heirloom, mild radish, Cherry Belle is a standard for urban core farming.  She will produce up to one inch in diameter radishes, perfect for salads and snacks.  Another reliable producer, Cherry Belle is a standard for urban core farms and gardens.
A mid-1800’s heirloom, this white radish has her history in reliable production and ease of growth traits.  Wonderful, narrow, finger-like radishes they are perfect for salads.  Serve crisp and cold.
A 1920’s heirloom and described by James Vick as a spinach that, "grows about ten inches high. Large deep green leaves, thick and tender, with rounded tips."  Giant noble spinach needs cooler weather but will faithfully give the urban farmer plenty of tasty greens for both salad and cooked dishes.  
Tyee spinanch is a slow to bolt spinach growing well in raised beds and intense urban core farm settings.  Tyee spinach leaves are smaller than Giant Noble but heavy producers.  Good companion spinach plant to grow alongside with Giant Noble.
Florida Permaculture Raised Bed Lettuces
Herbs/Spices
Borago officinalis grows to approxiately two to three feet in height and loves the cooler weather.  I’ve grown this plant successfully on urban core green roofs and in urban farm homestead raised beds.  The bright blue and purple flowers are visually an eye-opener and are often used as garnish for vegetable and fruit salads.  Good urban farm plant selection.
Standard pickling plant and herb, dill is an extremely drought tolerant urban farm plant with many culinary uses.  Our rabbits love the fresh picked leaves and the tall but tiny yellow flowers serve as an excellent attractant for pollinators.  Grows well in dry, neglected areas across the urban homestead.
An All America Winner in 1992 and introduced by W. Atlee Burpee Company, Fernleaf Dill exhibits a more compact growth habit than most of the other, sprawlingly large dill varieties.  Fernleaf dill is perfect for container growing or planting in heavily used raised beds.  As with the standard dill varieties, Fernleaf Dill provides good drought tolerant production as well as tasty culinary uses.
Fennel is popular for her licorice or anise-flavored seeds and bulbous base, both used in cooking.  Fennel is also a choice pollinator plant and brings a spray of light airy green to the urban core farmstead.  
An awesome landscape perennial, Bronze Fennel brings visual and culinary benefits to any urban farm garden.  Highly sought after by several Lepidoptera species, this hardy fennel can be used in cooking or as a tea.  Bronze fennel will grow about three to four feet high depending on climate and soil conditions and adds beauty and flavor to the herb patch.
A relative of oregano, marjoram is slightly sweeter and enjoys the cold weather.  She is very drought tolerant and her smaller leaves can be used to flavor meat dishes.  Marjoram is also used ethnobotanically in the Caribbean as a tea plant for both stomach and respiratory issues as she possesses an strong aromatic quality.
Standard flat-leafed parsley is a mainstay of urban core farms.  Used in Italian and Mediterrian cooking and for a variety of other uses (including keeping garlic fumes repressed in healthy diet breath), flat-leafed parsley is also sought after by many butterflies as larval food.
Curly parsley is a very hardy cultivar of the parsleys, reliable and useful as garnish, in soups, salads or to flavor meat dishes.  As with flat-leaf parsley, curly parsley is commonly used in Mediterranean dishes such as tabouli, hummus and other dishes.

Stormwater and Landscape Integration, Water Quality and Attenuation for Urban Greening

Combining stormwater and landscape together (site design requirement integration) can benefit both the developer and the environment!
Urban green.  Combining stormwater and landscape.  Kevin Songer.

In the past commercial and residential design have treated landscaping, stormwater capture, attenuation and treatment as separate entities.

Unfortunately this creates an over-sized, inefficient site footprint that does little to maximize profits or protect the environment.  This short sighted approach is usually referred to as 'code-minimum'.

Today there have been many new structural and porous underground collection and exfiltration systems appear in the construction supply marketplace.

These new innovative systems allow for stormwater collection, transport, storage and exfiltration to be accomplished within required landscape areas, potentially eliminating the need for open stormwater ponds.

The above illustration is my example of how stormwater and landscape can be very successfully combined, keeping the ecosystem healthy, the design efficient and the buildout profits maximized!

Thursday, February 2, 2017

Plants with Exfiltration - Answer to Urban Stormwater Runoff Treatment

Here is a quick eco-smart urban green stormwater treatment thought for the day.
Urban Green and Stormwater Treatment Integration

Take the massive amount of research conducted on how effective plants are with nutrient removal (P and N) along with their amazing capacity to fix carbon and combine with underground, permeable yet structural drainage filtration systems and you have the perfect combination of stormwater treatment, attenuation and landscaping all in a compact system.

The process may sound complicated yet in reality is very simple.

Use permeable pavers or a permeable surface in conjunction with a curb or gutter collection system to capture stormwater.

The stormwater is then routed horizontally through a permeable underground structural system.

Plants are installed in a larger, vertically oriented stormwater catchment system that can be connected in series to other units or to a central collection system.

The vertical collection tank is also a structural yet permeable unit where the plant grows in a removable top container.

Stormwater is then allowed to filter through the permeable structural system while watering the plants and recharging groundwater.

Exploring urban greening system integrated with stormwater treatment will become the future for design soon.

Wednesday, February 1, 2017

Green Roofs, Wildflowers and Native Plants

Rooftops offer a new way to showcase the wonder of Florida's native plants.
Urban Green.  Wildflowers on the roof offer a new perspective in which to consider native plants
Living roofs, planted with native wildflowers provide many benefits, including;
  • cleansing of stormwater
  • creation of habitat for pollinators, birds, and even wildlife
  • fix nitrogen and other nutrients
  • scavenge carbon and CO2
  • reduce heat island effect
  • attenuate stormwater runoff
  • create a sense of place
and so much more.

Native Plant Green roofs are amazing!

Monday, January 30, 2017

Simple Ecology. Cleaning Stormwater Before the Drain.

Nature is best at cleaning up after humans.
Urban ecology.  How could this drain be simply made more ecologically friendly?  Remove concrete pad and plant grass.

Nature usually offers resilient, inexpensive, simple pollution control measures with sand filtration and plant nutrient uptake design choices.

Below are four roadside stormwater drain photos.

In each case the stormwater empties directly into the Intracoastal Waterway, pollution, oils and greases, nutrients and trash and all.

Urban ecology. Bad stormwater design.  Drain empties directly into the Intracoastal Waterway.

In the first two photos there is no last line of defense to filter out any contaminants.
Urban ecology. Another harmful stormwater design.  Drain empties directly into the Intracoastal Waterway.
In the last two photos the drains are placed in a grassy swale.

Grass and other plants act as both mechanical filters for particulate matter and also capture nutrients like phosphorous and nitrogen.

Good Urban Ecology.  Stormwater drain is positioned in middle of a grassy swale for both sand filtration and plant removal of nutrients.
Good ecology and environmental protection many times can be as simple as placing a stormwater drain in a grassy swale rather than on the edge of a road's impervious surface.

Good Urban Ecology.  Stormwater drain is positioned in middle of a grassy swale for both sand filtration and plant removal of nutrients.
 
A curb cut is all it takes.

Urban green requires us to take advantage of every opportunity nature offers to work with pervious ground and plants in treating stormwater runoff.

Sunday, January 29, 2017

Urban Green With Simple Living Walls and Green Roofs

As I deal with a chronic cardiovascular disability that could end my life at any moment I have lots of time to reflect on Urban Green.
Simple Florida livingwall with plants grown into base fabric & attached to wire frame.

With a 24% heart output function I tire easily and so am either in a chair or bed most of the time.

Fortunately my mind whirls around Urban Green Concepts.  Especially after midnight when my mechanical heart parts end up making such a loud racket!

So I am going to try and push out these ideas for others to take and run with.

I've tried this before and usually fatigue gets the best of me.  Considering fatigue and long, detailed posts I am going to shift gears and go to shorter, frequent posts.  We shall see.

Firstly I recommend understanding of immediate environment, simplicity and use of native plants.

You must know the immediate environment if you expect to create an ongoing ecosystem capable of surviving in the environment.

Second forget the bells and whistles.  Simplicity is best.  Mimic nature if you can.

Finally though exotic landscape plants make great temptations for green roof and living wall use, your best bet is to use local native species.

OK.  Thats a start.  More #greenroof and #livingwall notes tomorrow.

Monday, December 19, 2016

Mr. Marfan Man, Do Not Pass Go, Do Not Collect $200, Go Directly To...

Each day is another opportunity to move across life's board game.  More likely than not I end up drawing the Go Directly To Jail card with each roll of the dice.
Marfan Syndrome slows me down but doesn't stop life from happening. #Dissection life

Of course in my Marfan dictated life the 'Go Directly To Jail' card bespeaks of oft unexpected maladies.

Physically and mentally there are so many challenges slowing our daily struggle towards the Park Place destination.

Constant setbacks are so frustrating, especially when I have adopted a healthy vegan and sometimes pescataria diet.

And I walk daily, do yoga, stretch, practice deep breathing, spirituality and all the 'right' things my body and brain need.

All the while I see young and old others drinking colas, eating fried fast foods and even doing nicotine seemingly unfazed health-wise.

So what did I do to deserve this?

Nothing, of course.

Its just I am challenged by a connective tissue disorder.

And living with a dissected aorta.

The healthy diet and faithful gratefulness and exercise does pay off I believe.

But this Mr. Marfan Man can seem to be making progress when that nasty little card is flipped over.

Go Directly To Jail can translate into a seriously pulled leg or thigh muscle, one where I honestly cannot even walk one step without feeling like I am going to fall to the floor.

Or the card can mean a huge hematoma, one the size of a grapefruit across my upper back, black and blue.  Purple too.  The hematoma disappear over time after the dark bruise slowly runs down my back or sides.

The Jail Card can wake me up in the middle of the night shouting in tempo to my mechanical valve, refusing to let me fall asleep for hours, manifesting itself in bad PTSD episodes.

Probably the most appropriate action the Monopoly board game maker could do would be to rename the 'Go To Jail' card 'Go To The ER'.

'Go Directly To The ER, Do Not Pass GO, Do Not Collect $200' fits the bill perfectly, especially for those strange, indescribable pains shooting through my chest, head, arms,  or legs.  The card drawn may also mean an episode of bad vertigo or the seeming inability to breath.

However after five years of living with dissection and the Marfan diagnosis I've begun to realize that its actually good to expect the 'Go Directly To Jail' card each day.  Its not that the Jail Card is good.  It is however important not to be caught off guard so frequently.

That way I'm not so surprised.  Its a little easier to deal with the frequent physics and mental setbacks.

You see now I know my setbacks are results of nothing wrong I've done, they are just the random design fluke that defines who I am.

I am special and different than most.

Thats bad and good.  Bad because I have to suffer, most of the time with unexpected painful and debilitating physical injuries and limitations.  Good because I am aware of this potential for physical injuries and that I am part of a broader group of people who want to spread awareness of 'connective tissue issue' life.  With knowledge we can overcome.

Being aware I have an advantage over others for long term survival, despite.

I know each day I have to be on my best survival game.

Living a Marfan aware life has rewarded me some decent benefits; such as lower, life extending blood pressure, healthy eating nutritional benefits and the positive impacts of my spirituality and gentle physical exercise, and focused health care.

But those Go Directly To Jail cards still keep popping up.

But now they don't freak me out quite as bad.  Because I expect them.  And I know I probably will make it through this next challenge.

I am grateful to The Marfan Foundation and the support groups across Facebook.  The people behind these efforts deserve kudos.

In the meantime I am quite over being surprised by the Go Directly To Jail, I mean 'Go Directly To The ER' card.  Its in the deck and if I get it I get it and will deal with it.  If I don't know how to deal with the challenge there is someone in the Marfan community who really can help.

Looks like there may just be more 'Get Out Of Jail Free' cards in the stack now.

Happy Holidays!






Monday, October 17, 2016

Urban Sustainability and Natural Stormwater Treatment, SoCo Cultural District

I've recently moved to southwest Florida and have been impressed with some of the forward thinking sustainable, 'green' urban stormwater ideas implemented by the local municipalities and contractors.
#Urban Sustainability and natural stormwater treatment by using grass for filtration
Water quality is a 'hot topic' to most all here.

Keeping urban runoff clean is important and especially so in this vicinity due to all the migrating water birds making winter homes nearby.

One of my favorite, sustainably easy and inexpensive to implement (during urban design phases) stormwater treatment methods is to install stormwater collectors in grassy areas rather than in black asphalt or concrete lots.

The above photo illustrates how the contractor installed the stormwater collection grate within a grassy swale.

Grass and surrounding vegetation acts as natural filters to clean stormwater before entering collection culverts and pipes.

Grassy areas also allow much of the runoff to infiltrate back into the ground area and eventually replenish the aquifer.

On the other hand, runoff collected from paved landscapes is not filtered per se and contains straight oils and greases and other toxins.

Every little bit helps.

Of course native ground covers and plants would even be better than grasses.

However I am encouraged by this one step in the right direction towards partnering with plants to clean stormwater and helping keep our world a bit cleaner.

I'll be posting some photos of sustainable, innovatively designed swales over the next few weeks.

Another exciting aspect of this area is the SoCo district in Fort Myers.  SoCo Cultural District is an area with integrated arts, cultural experiences, sustainability examples and neighborhood food markets.

Check out the above link and watch for more 'urban and cultural sustainability' examples here soon!



Saturday, October 15, 2016

Aortic Dissection, Connective Tissue Issues; Coping With All the Information

I've usually way too many apps open on my phone and am surprised to see how much faster my iPhone runs when I close them all except for the one presently in use.
Corkscrew Swamp hiking for Aortic Health
"Be here now."

More relevant to me than the app analogy is an image of paper file folders scattered across a desktop, flung open, stacks of typed or handwritten pages lying everywhere.  A jumbled up mess of a lot of information is not only confusing but disheartening too.

"Peace be still."

Life with a dissected aorta and Marfan Syndrome (the connective tissue disorder in part responsible for my torn aorta) and with chronic kidney disease from multiple open heart surgeries is a challenge not only on the physical limitation front but also because of the massive amounts of health information I must process daily.

Will this particular food raise your INR or drop the INR and cause a clot?

What about the bleeding an activity might cause if I get bumped or scraped?

What will I be doing when its time to take my beta-blocker that makes me want to fall asleep?

How long do dissectees usually survive?

Daily the questions fill the desktop of my mind like pages from the scattered, jumbled files or too many open apps.

My solution lately is to imagine taking a break and neatly filing all the paperwork and files back into the file cabinet in my back pocket.  Except for the one file I am using here and now.

Sometimes I switch to the app analogy and close all the open apps in my mind except for the one I need now.

So if I am driving then all the thoughts of medications, things I need to do, people I need to stay in touch with, my yoga and swimming I have not done for the day, my blog which I have not touched in a year - well all those thoughts disappear and my focus is only on the road and those cars around me.

Which is the way it should be.

Peace be still.  My blood pressure falls back to where it should be.

The people I am with take notice that I am more engaged presently.

And when I practice this mode of information management my chronic depression from living with  these challenging physical conditions begins to subside.

Be here now.

Close the files.  Close the apps.

Try telling yourself "Close the files. Close the apps" next time you are overwhelmed with a barrage of  information, thoughts and ideas running rampant.

Pease be still.

And then I can more easily deal with my "new reality" of living with a torn aorta.

When, in fact the "new reality" I've been reminding myself daily of is not really a "new reality".

Sure my aorta was not torn before my dissection but it was going to happen.  I just didn't know it.

Now, today I know I live with a pre-disposition (and a torn aorta) to connective tissue tears and all the cardiovascular and muscular problems associated with Marfan.

Understanding my dissection life is not a new, strange and unknown life for me is important.

I've always lived with the potential for cardiovascular problems, I just did not know it.  But today I understand.

The difference today is I have all the folders and information now about these chronic health problems whereas before I did not.  I am still the same person physically today yet I now know.

And all this new knowledge is what causes much of my anxiety.

I am overwhelmed and depressed until I remember....

Close the files.  Close the apps.

Peace be still.

Be here now.

And its all ok.

My back pocket file cabinet is especially important when I am writing this blog, or laying down to sleep or working on my art or doing yoga or preparing food or doing chores, you see I close out all the other apps, especially those files of mortality or other unpleasantries and focus on the task at hand.  Life is much easier when the winds of a thousand pages are not constantly buffeting my curly thin hair.

So when the dermatologist's office called yesterday morning and told me the mole they removed from my leg biopsied positive for melanoma, all the files flew out of the cabinet back onto the desktop of my life once more.

For a while I did the whole 'search the internet for answers on how to put the files back to the way they were before the phone call thing'.

Then I realized the melanoma had been there before yesterday, probably long before yesterday and the reality was similar to when I learned about my Marfan Dx.  I now had information I hadn't had before.

So I quickly filed the scattered papers and folders and put them back into the filing cabinet and closed out all those extra apps.

Instead of fretting about the 'M' word Dx we went to Corkscrew Swamp and watched the sun go down and the almost full moon rise.

And I enjoyed my evening.

The dermatologist office has a great MOH surgeon and they are scheduling a surgery to remove the affected skin area.  I'll open the 'mole' file as I have to just like I do with the 'dissection' file.

But I will also keep them closed when in not in use.

Scattered pages, even if they are full of important information, are useless when in an out of focused jumble.

So close out your excess files and put them away.

Be here now.

Life is really a privilege and I so enjoy focusing on each breath, each moment and each day.

Peace, be still.


Monday, August 15, 2016

Applying for Disability; Notes To Myself

Here are my personal notes on the topic of applying for disability.
Kevin's Dissected Aorta - visible intimal flap

This is not legal advice. The information here is only my recollections of what helped me apply for and receive Social Security Disability Insurance (SSDI) on the first attempt..

First of all let me say there are no 'tricks' or 'loopholes' to obtaining disability benefits.  Social Security has specific written protocol for determining who qualifies.  You either qualify or you do not.

Second, you must truly have a disability that will end in death or keep you out of the work force.

As a builder of custom green roofs I could no longer safely work atop buildings, climbing ladders and lifting super sacks of soil media in 100F degree heat.

As a lawyer by education I realized the first time my mind went totally blank for an extended period when writing a report that I could not honestly act as the best advocate for my clients.

Add to those issues dissected ascending and descending aorta, serious kidney disease as a result of dissected renal arteries, cognitive issues from two open heart surgeries and being on the heart-lung machine for long hours and other issues, pain, fatigue and the many other maladies those of us who have survived aortic dissection experience.

As my doctor said, "your number one priority is to stay alive right now, focus on physical therapy, your diet and new lifestyle reality."

If I had to apply all over again here is the approach I'd take:

Retain A Well Recommended Disability Attorney

  • Can save you lots of time and headaches
  • or, cause a lot of aggravation if your retain the wrong advocate without strong disability experience

I was intent on filing my own application because I thought I could tell my story better than anyone else and be my best advocate.

Preliminary Research 
1. Guide your doctors through their diagnoses of your conditions.
  • Learn to speak out about what hurts and how you feel.
  • Other than blood work or imaging/testing the only way doctors can document what you are capable of is through their assessment and by what you tell them.
  • Before each visit write out a detailed list of what hurts and how you feel.  Make sure to specifically address each area of bodily concern.  Kidney pain is especially of importance to those with dissected renal arteries or descending aorta dissection. Neurological issues matter too!
  • Make sure your list is included in their written medical record.  Many times medical records are cut and paste by the doctor or nurse.  Insist your records are customized with your input!
  • Ask that a copy of each visit medical record  be mailed to you.  Correct any inconsistencies or omissions.
2.  Collect All of Your Medical Records As Far Back As You Can Get Them!
  • Consider all your records to be relevant, even those five or ten years old.
  • Older records can help establish and document chronic conditions.
  • Arrange your records in three ring binders with tabs chronologically. Neatness and organization is paramount.
  • Scan and archive all the documents on DVD or CD, making multiple copies of the finished record disk.
3.  Correlate SSA's Blue Book cardiovascular section's relevancy to your medical records.

  • For Dissection cases SSA probably will start with Section 4.10 "Aneurysm of aorta or major branches" - link here.
    • Sec. 4.10 states "due to any cause (e.g. atherosclerosis, cystic medial necrosis, Marfan Syndrome, trauma) demonstrated by appropriate medically acceptable imaging with dissection not controlled by prescribed treatment (See H4.006)" qualifies for disability.
    • H4.006 states "When does an aneurysm have “dissection not controlled by prescribed treatment,” as required under 4.10? An aneurysm (or bulge in the aorta or one of its major branches) is dissecting when the inner lining of the artery begins to separate from the arterial wall. We consider the dissection not controlled when you have persistence of chest pain due to progression of the dissection, an increase in the size of the aneurysm, or compression of one or more branches of the aorta supplying the heart, kidneys, brain, or other organs. An aneurysm with dissection can cause heart failure, renal (kidney) failure, or neurological complications. If you have an aneurysm that does not meet the requirements of 4.10 and you have one or more of these associated conditions, we will evaluate the condition(s) using the appropriate listing."
  • Your application Must meet the standard of Sec 4.10 and H4.006 above.
    • Many people assume a stable descending dissection is a 'shoo-in' for disability approval yet this condition does not meet the published standard.
    • It is critical you document that your dissection is causing restricted blood flow to one or more of the organs detailed above.  
    • In most dissectees this is true yet doctors and/or applicants fail to communicate this to SSA.  Sometimes the information may be in the application but buried so deep the SSA medical reviewer misses it.
  • Dont Stop with Sec 4.10 or H4.006!  Read through the entire Blue Book and list any condition qualifying for disability in addition to your dissection!
    • There are many 'conditions' listed in the Blue Book.  Don't short yourself by failing to read through these and leaving these qualifying conditions out even though they are applicable to your medical condition.
  • Many applicants expect SSA medical reviewers to complete a detailed analysis of your condition to the qualifying conditions in the Blue Book.  Some reviewers are quite thorough.  Depending on work load some may not be quite as thorough or unintentionally fail to see a very important correlation.  Its up to you to be your best advocate.
4. Apply early!
  • Submit as complete and thorough an application as you can but apply quickly once it has been medically determined you are disabled.
    • The date of your application is usually considered the award date for retroactivity once appeals have been finished and you receive your award letter.  A years worth of application submittal delay can add up to ten or twenty thousand dollars.
    • You are better off with a denial on a complete application (of course proceeding with appeals) than you are waiting for months to finish your application.  Apply early.
5. Try not to stress.  The process takes time.
  • The SSA application process can be stressful.  Consider it a long term, step by step effort that will be worth the end result.
  • Realize Medicare will be delayed in most cases for two years after approval of disability or until you reach SSA retirement age.
  • If you feel it is moving too slow, write and call your state and federal elected representatives.  Their job is to represent you.  I have seen excellent results with concerted communications to a congressperson or senator (both state and federal).
6. Finally.....
  • Realize that this effort is about communication.  Many applications are denied due to incomplete applications.  Moreover failure to communicate needed medical documentation to SSA leaves SSA in a position of no choice but to deny.
    • You must communicate all your qualifying blue book issues to your doctor.
    • Your doctor must document these issues in appropriately acceptable medical records.
    • You must ensure SSA has these relevant for qualifying medical records and that the qualifying issues are highlighted somehow!
  • Never give up.  Its all a journey, one where we get there sooner or later....
Cheers!  Kevin.


Friday, July 29, 2016

Bog Rainstorm, Gíclee on Aluminum Plate, Signed, Original #Biodiversity Native Plants

18" x 18" Florida bog plants on aluminum plate, signed original.  Inquiries to kssonger@gmail.com
Florida nature art. Bog rainstorm with native plants.

Florida native plants include, xyris, sabattia, rhea, candy root and terrestrial orchids belonging to the Calopogon genus.

#biodiversity #native #plants

Sunday, July 10, 2016

Hogfish Key, Gíclee on Aluminum 18" x 24"

Hogfish key, inspired by the wonderful tasting snapper, Florida sunsets and native plant filled seashores.  Inquires to kssonger@gmail.com

Hogfish Key, Gíclee on Aluminum 18" x 24"