Friday, September 6, 2019

Our Amazing Bodies (Overcoming Chronic Disease)

Friday morning short verse:
...
Each morning I wake
another day is gifted,
surprise life party!
...

Hand of Fatima, Hamsa by Kevin
...
and also I totally love Natalie Merchant's lyrics to her song 'Wonder':

"Doctors have come from distant cities, just to see me
Stand over my bed, disbelieving what they're seeing
They say I must be one of the wonders 
Of God's own creation
And as far as they see, they can offer
No explanation"
Hope your Friday is amazing.  We have another day.
Kevin

Florida Haiku, Senryu Wildflower Poetry, Railroad Vine

Florida Wildflower Poetry, Railroad Vine, Kevin Songer

Railroad Vine

bright nectar filled cups
moths, wasps, ants and bees seek
oceanfront diner

Railroad vine, Ipomoea pes-caprae is also known as 'beach morning glory' and 'goat's foot', the latter name deriving from goat-foot shaped leaves on the vine.

Salt tolerant railroad vine is an amazing native wildflower growing in primary dunes, often straight down the beach towards the surf.  Look closely and you may see thousands of pollinators buzzing about railroad vine's luminescent purple flowers.  This vine is an important beach-side insect, butterfly, small mammal and bird food source.

Railroad vine's common name probably arose from the vine's long straight reaches, with leaves and flowers jutting out to each side much like a long straight run of railroad tracks, helping stabilize primary and beachfront sand dunes.  Drought and salt tolerant, this native wildflower makes a great seashore landscape plant, just give the vine plenty of room to grow!

Thursday, September 5, 2019

Florida Short Poetry, Wildflowers and Haiku

Sea beans
...
prickly liana
spiny pods nest lustrous beans,
wait for sea pearls' fall
...
Gray Nickerbean, Caesalpina bonduc,
Kevin Songer Florida Nature Artist

Rare Miami Blue and Nickerbean Blue butterfly larvae feed heavily of the foliage of Gray Nickerbean whose seed pods are as outrageously beautiful as the lustrous seeds nested inside.  The maritime loving Gray Nickerbean liana aggressively grows into a rambling, impenetrable hedge before flowering and dropping its gray beans onto the seashore.  With the seasons, tides and sargassum flotsam, Gray Nickerbeans travel around the world, carried hence by La Mar.  Sea Beans, also know as Sea Pearls have been used by peoples for jewelry, medicine and artisan wood inlays for millennia. 

Wednesday, September 4, 2019

Best Medical Advocate, We Must Be Our Own and Know How To Take Good Blood Pressure Readings!

This post is about the journey of becoming our own best health care advocate, and also how to take blood pressure readings.
American Heart Association Publishes How To Take Blood Pressure Directions,
Here is my home cuff reading today

I am forever grateful for the Memorial Hospital ER surgeon who fixed me the night my stretched aorta tore.  Thankful also for the St. Vincent's primary care physician I had post surgery who worked with me to understand my number one priority in life was to stay alive.

There have been some great doctors who helped me along recovery's path.  To these health care professionals I am grateful for their artisan healing touches.

There too have been many doctors and nurses though who were actually afraid of me.  It is so easy to see the lack confidence in a health care professional's face despite their efforts to hide their fear of not knowing what they are dealing with in me.  I love them too for they have taught me to be my own best health care advocate.

Lately my systolic blood pressure readings have been quite a bit higher when I visit a medical facility.  Aware of 'white coat syndrome' I brushed these anomalies off as just a result of the doctor's office stress.  But the 160+ systolic readings the nurses were measuring were disturbing to both them and especially to me with my descending dissection.

Back at home the readings on my arm cuff unit were normal (110/60).  My pulse usually hovers around 50 beats per minute or about one per second.  My home unit has been previously calibrated.

Either my home blood pressure cuff was incorrectly calibrated or the health care professional's understanding of how to use a stethoscope to obtain a blood pressure reading (auscultation) was flawed.

On the next visit to my primary care my systolic was high again, in the 160s.  The stress of wondering why I was being diagnosed with high systolic led to even higher blood pressure readings as my adrenaline kicked in.

What was going on?  I was asymptomatic with respect to normal high blood pressure symptoms and my home cuff was reading much lower.

My first thought centered around arm position.  Perhaps the practice of reading blood pressure when the arm was hanging down vertically instead of horizontal was the culprit.

The American Heart Association (AHA) recommends the cuff should be level with the heart while the arms rests on a flat surface.  Could my vertically hanging arm make a difference?  Read here for the AHA's guidelines.

Back at home I tried taking blood pressure readings with my arm resting in many different directions.  What I found was it really did not make a significant amount of difference how my arm was positioned with variances of ten points or so being the maximum.

Next I suggested to my health care professional they rest my arm per AHA protocol just to be consistent.  Ultimately though, arm positioning did not provide an answer to the 30 point or more differences between my home cuff and the health care professional's auscultation method.

In the auscultation method, the health care professional inflates the cuff to a pressure that stops blood flow with compression of the arm's brachial artery.  As pressure is released the brachial artery blood flow resumes and produces an audible sound known as a 'Korotkoff' sound (K-sound).  The pressure at which the Korotkoff sound is heard translates into the systolic blood pressure reading.

As additional cuff pressure is released the restriction in the brachial arterial decreases until finally there is no more audible tapping or k-sounds.  The pressure which no additional Korotkoff sounds are heard is the diastolic blood pressure reading.

Finally I asked the nurse to use a cart-based 'doctor-on-a-stick' unit to measure my blood pressure, just to see if there was a difference.  Perhaps the 'doc-on-a-stick' would exclude the heart valve noise.

The computerized cart based unit came back with a systolic reading significantly lower than the nurse's auscultatory method.  The nurse shrugged and suggested the variance was due to my 'white coat syndrome' or doctor visit stress levels.

Unfortunately, the medical clinic's high systolic readings were taking their toll on me.  Not only was I stressing over the worry what high systolic blood pressure could do to my existing descending aortic dissection, but my health care professionals were now suggesting changes to my medications to further manage my alleged hypertension.

Last thing I was interested in was higher doses of blood pressure medications.  Metoprolol already had me feeling like a tall, red headed zombie.

Back on the internet I searched on a few more specific term combinations.

One search returned a helpful article entitled, "Antecubital Transmission of Mechanical Valve Closure Sounds; Recognition of a Potential Source of Error During Blood Pressure Measurement".  The link here opens the article in a new window.

I had to read the article about five times.  Pumphead masks simplicity.

What I understood the paper discussion to propose was, because mechanical valve sounds travel through extravascular tissue they may be heard even when the cuff is inflated at high pressures.  Unless the health care professional is substantially familiar with what a mechanical valve sounds like through a stethoscope, a heart valve click could be mistaken for the first k-sound and a false systolic reading obtained.

One may ask, 'is this a big deal, really?'

Yes.  Patient worry about hypertension that may not exist is unnecessary.   Too, I have a St. Jude mechanical valve.  Maybe my health care professionals were hearing my valve clicks rather than Korotkoff sounds. Perhaps my systolic was not really that high.

More importantly, prescribing a patient additional hypertension medicines unnecessarily could have significant impact and perhaps even create damaging hypotension.

The most important take away is not blood pressure measurement procedure.  The most important takeaway I am learning from all this is I must be my own best health care advocate.

Trust in the health care system is so much better when I learn about, verify, confirm, obtain a second opinion and most of all trust my own instincts.  When in doubt step back then verify.

After all, our number one priority in life is to stay alive.  My doctor told me that.


Monday, September 2, 2019

Florida Green Roof Wildflowers and Native Plants

Florida Green Roof Wildflowers, Breaking Ground Green Roof
Looking back over some of the Breaking Ground Green Roof (Jacksonville) photographs, I came across this lovely wildflower shot.  Wildflowers on the roof! Gaillardia, Echinacea, Rudbeckia & much more...

Florida Short Verse, Coontie, Zamia spp. #haiku

Zamia
...
cones and leaves nourish
rare atala larvae host,
butterfly bitters
...
Coontie, Zamia spp.; Florida Native plant and Wildflower Haiku by Kevin

So much to say about coontie, a marvelous Florida native cycad.  Look for more coontie short verse in my upcoming second volume of Florida Short Verse!

I Ripped (and survived) #aortic #dissection

"I Ripped - and survived"
I Ripped and survived Aortic Dissection

Came across this rad Tag Font by Andy Panchenko & added a splash of aortic dissection.
#aorta #dissection


Sunday, September 1, 2019

Nine Principles of my Aorta Dissection Life

September is Aortic Dissection Awareness month.

Here are some of my Dissection Life tenants.  Subject to change each day and don't try these on your own at home, lol.


Kevin's Aortic Dissection Hack List
  Aortic Dissection has opened so many doors for me.  I am grateful for each heartbeat and each second I have to live this great adventure.

Florida Living Walls and Green Roofs, Nature Designed

Florida Living Walls, Vertical Urban Core Green by Mother Nature, Daytona Beach Church
For most my adult life I've been fascinated with understanding how plants colonize, live and proliferate on urban core structure roofs and walls.

Florida Living Walls, Vertical Urban Core Green by Mother Nature, Daytona Beach Church
Here are a few pictures of ferns finding a home on a church in Daytona Beach.  The benefits of urban green are many, including; carbon sequestration, urban heat island effect mitigation, habitat and pest control, rainwater attenuation and purification, oxygen production, sense of place and beauty and much more.

Florida Living Walls, Vertical Urban Core Green by Mother Nature, Daytona Beach Church
Examining how nature adapts plants to masonry provides insight into successful living wall design.

Next time you see a building with plants adorning the walls, stop and take a look.  Think about porosity, surface texture, locale, sun exposure and other variables contributing to the successful vertical green.
Florida Living Walls, Vertical Urban Core Green by Mother Nature, Daytona Beach Church

So much to learn and so many walls to plant!


Anti-Inflammatory Diet Important to Aortic and Cardiovascular Health

Inflammation in our body can cause aortic valve and aorta deterioration. Ask your doctor how your diet and lifestyle can be modified to decrease overall inflammation. My approach is to eat wild caught fish and sea vegetables, pasture raised meats along with LIFE foods - Local In-season Fresh Eats, and organic when organic is available, think Mediterranean Diet. It's never too late to start doing maintenance on the body. Here is an excellent note about how inflammatory markers can predict success with cardiovascular intervention, specifically aortic valve replacement. Yeah, I know - who wants to think about disease - but this is thinking about health! Ditch the vegetable oils and processed foods and sugar and focus on real, slow foods grown, raised and harvested locally! Live longer and healthier!

Friday, August 23, 2019

Peppergrass, Lepidium virginicum Florida Native Plant Short Verse

Florida Wildflower Poetry, Peppergrass, Lepidium virginicum
...
vacant lot snacking
munch leaves and spicy seeds
i'll try if you do
...

Peppergrass, Lepidium virginicum.  Peppergrass brings back fun memories from my childhood where we would sit in the vacant lot and pick peppergrass seeds off the stem for spicy childhood snacking.  An important forage plant for wildlife and birds.

Thursday, August 22, 2019

Elderberry, Sambucus nigra, Florida Wildflower and Native Plant Poetry and Art

Florida Wildflower Poetry and Art, Elderberry
...
elderberry jam
jar lips' purple goo
absurd not to lick
...

Elderberry has been revered as an important plant for centuries.  Hippocrates as well as many others throughout history spoke of elder's ability to feed and heal.  The purple berries and flowers have been found to be effective in combating influenza and in also making delicious jams and pies.  Elder grows well in a variety of soils and provides communal and foraging to pollinators and small mammals alike.

Wednesday, August 21, 2019

Climbing aster, Symphyotrichum carolinanum, Florida Wildflower Poetry


Climbing aster, Symphyotrichum spp.
..
lilac stars climb
wreathed through cypress, bag of
yarn not twisted more
...

Climbing aster can be reliably found in full lush bloom, even in the driest and hottest of summer droughts.  This shrubby vine produces masses amounts of highly fragrant luminous purple and mauve flowers. Once the vines start weaving through trees they form an almost impenetrable barrier.  When no other summer drought flowers can be found, climbing aster is there to feed hungry monarch butterflies.

Tuesday, August 20, 2019

Thistle, Cirsium spp., Florida Native Plant Short Verse

Thistle, Cirsium spp.
...
looks are deceiving
bull thistle's naughty habits
are swallowtail's delight
...

Across Florida, I see more swallowtails feeding off thistle flowers than almost any other roadside wildflower.

Monday, August 19, 2019

Toad flax and dock, Linaria canadensis and Rumex spp.

Toadflax and sorrel, Linaria canadensis and Rumex spp.
...
toad flax and sour weed
roadside kaleidoscope
mower comes too soon
...

Thursday, August 1, 2019

Just Another FB Rant About One of My Doctors

Dear Doctor: 

I want to extend an offer of help. FYI, you can tell me the same thing in the affirmative or in the negative. No need to predictably revert to the negative when blurting out my condition. You are revealing your insecurities! 


Fear not as I am here to help you. Next time you come in the exam room to speak with an aortic dissection survivor bite your tongue before blurting out 'after looking at your CT scans If I didn't see you sitting here I'd think you were dead or on the operating table!' 


Copy and paste or memorize the following utterance and don't act surprised I'm sitting in front of you with my torn aorta. You may say, 'You are a survivor. Your body is strong and you are on your way to recovery. I'm glad to be on your health management team and here is what I recommend.'


I promise then not to refer to your as Dr. Depression or Dr. PTSD and you may earn my trust. Hey, without me you're resume would not be as experienced with rare diseases.


You can do this. I got your back, Doc. I'm still alive. My aorta is torn, yup, but its like warped plywood - may be separated but still holding strong. And I promise I won't speak anymore of your insecurities.

Tuesday, July 30, 2019

Exploring Gratitude and Amazement in our Daily Lives

One of the more effective life hacks I've learned that works well for me from a mental and physical perspective is expressing morning gratitude and amazement.
Verbalizing Gratitude and Amazement Helps Me Heal


This started with the sounds my mechanical aortic valve makes every time my heart beats.  My aortic heart valve is obnoxiously loud much of the time.   I can usually hear the clicking and clacking noises the St. Jude medical device at most anytime of the day.

Hearing each heart beat has its advantages, for instance, I never need a metronome.  With my exercise regime and medications the pulse stays between fifty and sixty beats per minute.  Right on time.

Having an ever-present click-clock may be similar to Pan's Croc, you can hear me coming.  I also never need a blood pressure unit to take my pulse.  I know what my pulse is just listening to how far apart the clickity beats sound.

The audio can be extremely annoying too, even frightening when I am in PTSD mode.  Lying awake in the stillness of the night not only do the beats sound terrifyingly loud but they also make me realize just how fragile life is.  One heart beat away from no clicks.

Having a quiet human aortic valve may shield us from the sounds of hearts beating because 'out of sight, out of mind' is such a true premise.  Maybe that is why I never pondered about my heart beat before the aortic dissection event.

Fortunately I wake each morning and those clicks are still ringing strong, and so I am surprised and grateful.  From the rise of these morning spontaneous emotions I've put in place a purposeful approach of expressing amazement and gratitude.

Now amazement and gratitude are especially present in my mornings, and I am working on expressing these emotions throughout the rest of the day.

Verbalizing words or phrases such as; 'wow', 'I woke up to another day' and 'thank you!' help me habituate the appreciative approach.

Today I'm saying, 'thank you lungs', 'thank you eyes', thank you heart' and 'thank you universe'!  Along with the gratitude come words of amazement.  Exclaiming 'yes, another day!' and 'I'm alive!' or 'wow, the morning is so beautiful' and 'warm sunshine feels so good on my skin' keeps me in a marveling groove.

There are many articles about the benefits of gratitude and amazement.

Finally, I've found lots of fun in exclaiming at any given moment. 'Wow!  This is amazing!'  Amazement and gratitude make me happy and assist in keeping depression at bay.

Fundamentally I'm a realist.  I do not deny the chronic health challenges each of us face moment by moment.  I truly believe it is ok to express all range of emotions, positive and negative.

However, like a well-timed morning coffee break or walk in nature, exclaiming aloud with gratitude and amazement helps me along my metamorphosis out of stale chronic life into wherever my journey leads.

Sunday, July 28, 2019

A Healing Journey, A Metamorphosis

Welcome to my healing blog.  I'm sharing here the life and personal health management hacks that helped me move from serious chronic health issues to a happy and fulfilling life.
Walking has been key to my daily metamorphosis journey from #Chronic life to #Health.  Today I'm hiking Johnson Beach sand dunes.


Baby steps, fresh air and fresh local food were key to my health metamorphosis.

I'll try and post daily and we all know how intentions go, but I will try.

To start here is a glimpse of my daily distractions, self-medications, healing modalities or anything we wish to call what works.  I've found more healing tips from others who've shared the chronic illness path than from all my doctors combined (not discounting all the good my doctors have done for me too).

First, just really briefly, I'm not supposed to be alive.  My ex-cardiothoracic surgeon reminded me of this on a recent visit.  I ignored her for the most part.  Anyway I've survived a massive aortic dissection and subsequent heart infection.  Bionic body parts are embedded inside.  My leg bears the large scar of melanoma surgery and my stomach is rift with incision marks from my colon removal.  I know PTSD and depression.  I know fatigue.

But there is something better out there and good life does not have to be a result of hard work outs from the gym.

I've enjoyed my journey of health metamorphosis.  Life is a journey for sure, ever changing.

So stick around and even subscribe!  I'll be sharing those health hacks that work for me and even those hacks that don't work as effectively.

Here are some of my enjoyable happenings from today.
#Art #Therapy has been an important part of my chronic illness recovery.  This particular piece is torch over pallet wood with oil pigment - a homeless vet whose caregiver is jumping the train, leaving, from caregiver burnout


I dropped off an art piece at a local gallery about a wheelchair bound disabled vet whose caregiver friend is jumping the train to leave (caregiver burnout is hard 'not-lol').  The art is torch over pallet wood glued together with oil pigment and the piece was juried into the show!  Yaaaay.  I'm always uplifted mood-wise when an art piece is juried into a show.

Later I hiked the Johnson Beach sand dunes boardwalk.  Walking has been the number one low impact health management tool I rely on.  After my second open-heart surgery I started off with three or four steps, adding a couple steps a day.  It all adds up.
Fresh salad from our homegrown veggies - Eating healthy, local, organic foods has really had a positive impact on my health

Roasted garden veggies for #cardiovascular & #gallbladder health

#Heart healthy backyard pear tree fruit sautéed in ghee - yummy desert!


Slow, local food is another amazing metamorphosis tool we've discovered.  Most of our summer meals come from our front and side yard gardens.  Here is a fresh salad Judy made, and grilled veggies too.

So stick around. There is lots more to share about leaving the realm of chronic illness darkness and journey back into a happy, fulfilled life.

Cheers!  Kevin.